Support Resources for Chronically and Environmentally Ill
You are not alone. There are hundreds of thousands of folks who have chronic illness with labels such as Chronic Fatigue (CFS), Fibromyalgia, Chronic Fatigue and Immune Deficiency Syndrome (CFIDS), Multiple Chemical Sensitivity (MCS), Chronic Inflammatory Response Syndrome (CIRS), Mold illness, Lyme, Co-infections, and more. They are all similar, and have overlapping (if not identical) causes. Because they sap energy and ability to function, these symptom patterns can be extremely isolating. It is terribly important to connect with others who are facing a similar struggle. Share resources, ideas, failures, successes, or just vent.
One of the most magical things that happened in my Seattle practice was when I started offering IV therapies and my MCS/ CFS patients started meeting each other during "group drip" times. Many friendships developed. Suddenly they had someone else who understood that they needed to walk, but could only walk for 10 minutes. They had someone to share meals and cooking with who was also on a challenging diet. They could inspire each other to try things that had worked, and to keep trying. When these connections began happening, I saw a real change in many of these patients. I also learned a lot from them.
If you are struggling, know that you do not have to do it alone. Check out some of these leads for support organizations and groups.
One of the leading clinics in the country for environmental illness
Support group for people with environmental illness
Like Our Stolen Futures site, the site design is ancient, but the information is good and up to date.
Richie Shoemaker's website
These are closed groups, you must ask to join
Mold Avoiders (site and FB)
Toxic Mod, CIRS and Lyme Disease Support Group (FB)